Trials and tribulations of a patient in search of a bone marrow transplant

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Wednesday, June 4, 2008

Day 25...Good News!

Very good news here. After two weeks in ICU, they moved Steven last night to the main floor (445). Then today, they said he could go home on Friday. He was very, very scary sick there for two weeks, then the heart doctor came on and changed his meds around and the improvement was dramatic. They say he has congestive heart failure, but we will worry about that later.

Steven has to go in for a bone marrow aspiration on Monday. They will do DNA testing to see if the donor's system is taking over. And check to see if there are any signs of leukemia left. It should take about 7 days to get the test results back.

They will then monitor him closely to check on Graft Versus Host Disease (GVHD). He is still needing insulin so I don't know how we will need to manage that.

As you can imagine, Steven is very excited. He is sharp and good spirited and it is wonderful to see. They have started him walking the last two days, actually taking him down in the elevator and letting him walk outside for a few minutes. His legs are skinny little sticks, but he is pretty steady now. Hope we can get some weight back on him soon.

This is a good time to call or visit for the next couple of days for everyone who asked.

For all of you who have asked how they can help, driving would be of huge assistance. Lisa cannot drive to Dallas and these clinic visits will go on for months and months and months. They really don't want Steven behind the wheel for a while.

Thank you to everyone for your support and concern. Steven is hanging in there!


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